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Rare Disease Companies Unite to Advocate for Life-Changing Therapies

Published: May 13, 2021 By Kate Goodwin There are more than 7,000 rare diseases identified in the world today. While “rare” means that less than 200,000 people in the US are affected, to suffer from a rare disease is not actually rare at all.  Around 10% of the American population suffers from a rare disease. A shocking 90% of rare diseases do not have an approved treatment on the market.  A  first-of-its-kind organization launched today unifying the voices of life science compa...
United States Hunter Meyer Alnylam Pharmaceuticalshas Aeglea Biotherapeutics Brittany Meyer Rare Disease Company Coalition

Rare Disease Companies Unite to Advocate for Life-Changing Therapies

Published: May 13, 2021 By Kate Goodwin There are more than 7,000 rare diseases identified in the world today. While “rare” means that less than 200,000 people in the US are affected, to suffer from a rare disease is not actually rare at all.  Around 10% of the American population suffers from a rare disease. A shocking 90% of rare diseases do not have an approved treatment on the market.  A  first-of-its-kind organization launched today unifying the voices of life science compa...
United States Hunter Meyer Alnylam Pharmaceuticalshas Aeglea Biotherapeutics Brittany Meyer Rare Disease Company Coalition

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