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European Union needs action plan to provide better diagnoses, treatment for rare diseases

At its conference in Bilbao, the European Economic and Social Committee (EESC) urged the European Union to launch a European action plan stepping up cooperation between national health systems.

Stella kyriakidesGotzone sagarduiLily ramseyBaiba miltoviEuropean unionMembers of the european parliamentInformation societyEuropean commissionEuropean reference networks ernsEuropean health unionEuropean solidarity fundDepartment of healthEuropean economicSocial committeeImage creditMember states

EU rare disease strategy must start at national level, stakeholders say

EU rare disease strategy must start at national level, stakeholders say
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The UK is missing out on EU collaboration to improve treatment for rare diseases | Brexit

<strong>Letter:</strong> The absence of an agreement on participation in European Reference Networks has negated years of progress on providing the best care for patients, says <strong>Prof Marc Tischkowitz</strong>

United kingdomEuropean reference networks ernsReference networks

gov ie - Minister for Health Stephen Donnelly welcomes Ireland s participation in the European Union s 1+ Million Genomes Initiative

gov ie - Minister for Health Stephen Donnelly welcomes Ireland s participation in the European Union s 1+ Million Genomes Initiative
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Patient hopes build around the European Health Data Space

Europe’s hub for health data is expected to launch later this year, and patient groups are optimistic about its potential.

Tamsin rosePetra wilsonEuropean health policy eu affairsEuropean reference networksEuropean health data spaceEuropean health policyReference networks