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SILVER SPRING, Md., March 3, 2021 /PRNewswire/ In partnership with more than 70 advocacy groups, healthcare providers, and biotech companies, the Tuberous Sclerosis Alliance (TS Alliance), an internationally recognized nonprofit that raises awareness and funds to fight the rare genetic disease tuberous sclerosis complex (TSC), recently issued a letter to the National Governors Association that calls on states to immediately prioritize Americans with life-threatening rare diseases in their COVID-19 vaccine rollouts.
In late January, President Biden announced a strategy committed to vaccine distribution for high-risk individuals, specifically those with underlying conditions, including rare diseases. However, the 25-30 million individuals in the United States with rare diseases and their caregivers have yet to be prioritized in many states. The letter has already been submitted to several states and will be presented to every state in the
TS Alliance Advocates for Prioritization of Rare Disease Patients and Caregivers for COVID-19 Vaccines
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Managing Scleroderma Takes a Team – and Your Dermatologist is a Key Player
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Dermatologist Dr. Allison Britt Kimmins, MD with Advanced Dermatology PC, Offers Tips on the Latest Treatments to Control Scleroderma
Dr. Allison Britt Kimmins
With scleroderma the body’s collagen production goes into overdrive. On the skin, this extra collagen manifests as hard patches. CHADDS FORD, Pa. (PRWEB) February 03, 2021 “’Scleroderma,’” notes dermatologist Dr. Allison Britt Kimmins, “presents as hardening of the skin.’ But skin changes are just one aspect. There are two main types of scleroderma: localized and systemic. Today, we know that a team of doctors and a range of treatments are needed to treat scleroderma, so patients can maximize their quality of life.”
Obituary: Paul J. Cereste
Paul J. Cereste 1947 - 2020 WEST BATH - Paul J. Cereste, 73, of West Bath, passed away peacefully on Dec. .
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Paul J. Cereste
Paul J. Cereste 1947 – 2020 WEST BATH – Paul J. Cereste, 73, of West Bath, passed away peacefully on Dec. 8, 2020, at Gosnell Memorial Hospice House in Scarborough. His wife of 53 years, Sue, was at his side. Paul died of scleroderma, a rare autoimmune disease that can manifest itself in a number of forms. His was known as diffuse systemic and can affect any organ in the body. In Paul’s case the disease destroyed his digestive tract functioning. Unfortunately, there is very little in the way of effective treatment when digestion is affected. Paul was only diagnosed with the disease a little over a year and a half ago. Paul’s case progressed unusually rapidly. He fought the disease and its ravages valiantly, with stoicism and courage, until just days before he died. In addition to his loving wife, Paul leaves two daugh
November 27, 1962 - November 1, 2020
Debra âDebbieâ Kay Davis, age 57, passed away unexpectedly at her home in Island City the afternoon of November 1, 2020.
Debbie was born to William Fred Davis and Sandra Joyce Lare on November 27, 1962, in Baker, Oregon. She grew up in North Powder on the family cattle ranch.
Debbie attended elementary through high school in North Powder where she played the trumpet in band and was active in sports. She played basketball and volleyball until diagnosed with linear scleroderma, which caused muscle loss in her leg, making it too weak for Debbie to continue playing sports or to ski. Debbie dearly missed these activities.
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