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Mom noticed birthmark above her daughter s eye It was sign of seizure-causing condition

Mom noticed birthmark above her daughter s eye It was sign of seizure-causing condition
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United statesAnna pintoSturge weberNational institute of neurological disordersSurge weber syndrome clinicBoston childrenNational instituteNeurological disorders

Port Wine Stain Connected to Sturge Weber Syndrome And Seizures

Some babies with port wine stain birthmarks above their eyes, on forehead have rare disease called Sturge Weber syndrome, which can cause seizures. A new treatment is changing that.

United statesSturge weberDanielle gourdeauAnna pintoNational institute of neurological disordersCourtesy danielleSurge weber syndrome clinicBoston childrenNational instituteNeurological disorders

Little Suamico family asking for the public s support in caring for 10-month-old with rare condition

LITTLE SUAMICO, Wis. (WFRV) – For Brittany and James Dobry, taking care of their ten-month-old daughter Angelica has been anything but normal. Angelica was born with Sturge-Weber Syndrome (SWS). The rare genetic condition is linked to the port-wine marks along the left side of her body, covering her brain and eye. They are malformations in […]

James dobryFor brittanySturge weberHometown pubDaughter angelicaSturge weber syndrome

Little miracle as girl who was predicted to never be able to walk takes her first steps

Alice Thomas and Dan Young from Evesham, Worcestershire, were overwhelmed with joy when their daughter Lily took her first few steps - against all odds after her diagnosis

United kingdomSalice thomasJoe abbottDan youngSturge weber syndromeNeonatal intensive care unitWorcestershire royal hospitalSturge weberBirmingham childrenPaediatric glaucoma surgeonMiracle babiesMedical miracles

Sturge Weber Syndrome: Evesham girl finally learns to walk

The three-year-old s parents were told she may never be able to walk due to her having Sturge Weber Syndrome.

United kingdomSalice thomasSturge weber

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