Waiting game after lad s lemon-sized brain tumour removed
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Waiting game after lad s lemon-sized brain tumour s removed
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My differences are what make me beautiful - by Kathryn Lewsey 17 Mar 2021
Diagnosed with neurofibromatosis aged nine, Janu Dhayanathan was ashamed of her skin.
Not only did the tumours that covered her body attract nasty comments from her peers, but they also caused her a lot of pain.
It wasn t until Janu was in her early 20s that she decided to embrace her condition which has allowed her to feel empowered, rather than shying away from the world.
Now, she s encouraging others to be kind to those with a difference.
Staring into the mirror, I couldn’t help feeling despair at the lumps that had cropped up on my face.
Jess Russell (middle) with her mother, Carey and brother, Matthew.
Carey’s daughter, Jess, suffers from Neurofibromatosis (NF), a genetic disorder which effects one in every 2500 Australians, and causes tumours to grow on nerves throughout the body, including the brain and spine.
Carey was herself diagnosed with NF while giving birth to Jess, and not long after found out there was a 50 per cent chance the disorder would be passed on to her daughter.
“I felt a deep sense of guilt when Jess started forming birthmarks all over her, because I instantly knew that she had inherited this condition,” said Carey.