what should happen now is clear. the system needs to be changed and fair for everybody, for adults and children. i don t want sarah in front of anybody who is sicker. it should be the sickest person first. javier s family knows the pain of waiting all too well. in 2009, his brother who also had cystic fibrosis died whale waiting for a transplant. they initiated the lawsuit against hhs and secretary sebelius urging her to change the under 12 rule. she was questioned about it during a hearing. the worst of all worlds in my mind is to have some individual pick who chooses and who dies. you want to process where it s guided by medical science and experts. dhhs has declined to comment on the on going legal matter, and on monday the organization