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Future of Rare Disease Research: Ethics, Treatments, and Access
PHILADELPHIA- In celebration of the 10th Anniversary of the Orphan Disease Center, pioneering gene therapy scientist James Wilson, MD, PhD, a professor and director of the Penn Gene Therapy Program and the Penn Orphan Disease Center at the Perelman School of Medicine (PSOM) at the University of Pennsylvania, will lead a two-day symposium, featuring former Prime Minister of the United Kingdom and rare disease parent David Cameron and National Institutes of Health Director Francis Collins, MD, PhD, among many others. The event will take place on Wednesday, February 24th and Thursday, February 25th.
Published: Tuesday, February 2, 2021 Linda Birnbaum (L) and Lisa Jackson (R) Photo credit: Louie Palu/ZUMAPRESS/Newscom
Linda Birnbaum (left) left her job leading the National Institute of Environmental Health Sciences during the Trump administration. The Biden administration faces the challenge of refilling the ranks of scientists, like her, who left the federal government during the Trump era. Birnbaum is pictured in this 2011 file photo next to then-EPA Administrator Lisa Jackson (right) at a Senate Environment and Public Works Committee hearing. Louie Palu/ZUMAPRESS/Newscom
Linda Birnbaum would have continued to direct the National Institute of Environmental Health Sciences, but she says she was tired of being so tightly controlled.
Bill Gates surprised by virus conspiracy theories2021|02:07 Crazy and evil. That’s what Bill Gates thinks about the volume of conspiracy theories about him spreading on social media during the coronavirus pandemic. In an interview with Reuters, the Microsoft co-founder turned philanthropist said the combination of a frightening pandemic and the rise of social media likely fostered the millions of online posts and those theories about him and the U.S. top infectious disease expert Anthony Fauci. Nobody would have predicted that I and Dr. Fauci would be so prominent in really kind of evil theories about, you know, did we create the pandemic or are we trying to profit from it and on and on. And so, I m very surprised by that. I hope it goes away.” Through his foundation, the billionaire has committed at least $1.75 billion to the global response to the health crisis. He’s baffled by the claims that he and Fauci created the pandemic to try to control people and that they wan