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The ALS Association Massachusetts Chapter Hosts Inaugural

The ALS Association Massachusetts Chapter Hosts Inaugural “CEO Soak” on June 10 in Downtown Boston Event Builds on Ice Bucket Challenge Legacy to Raise Funds for Local Families Living with ALS The ALS Association Massachusetts Chapter Norwood, Massachusetts, UNITED STATES NORWOOD, Mass., May 11, 2021 (GLOBE NEWSWIRE) The ALS Association Massachusetts Chapter is encouraging local leadership to get soaked for a great cause. On Thursday, June 10, the organization will host its first-ever CEO Soak at Rings Fountain on the Rose Kennedy Greenway in downtown Boston, with an option to soak remotely at the office or home. The event’s $100,000 fundraising goal helps continue providing vital care services for local families living with ALS, while raising awareness for the incurable neurodegenerative disease.

Company tied to ALS breakthrough at UMass Medical School wins FDA investigational drug acceptance

By Grant Welker A firm making gene therapy for rare diseases that was co-founded by a UMass Medical School professor has won regulatory approval to continue research and investigatory work for an ALS therapy. Apic Bio, now based in Cambridge s Kendall Square, was co-founded by Dr. Robert Brown Jr., a professor in UMass neurology department. Brown was a lead member of the team that discovered a particular enzyme as the first genetic mutation linked to ALS, or amyotrophic lateral sclerosis. The new therapy whose investigational new drug application was approved by the U.S. Food and Drug Administration began nearly 30 years ago with the gene therapy research conducted by Brown and others. The therapy, whose approval Apic Bio announced April 21, is aimed at slowing or reversing the progression of ALS, a disease also known as Lou Gehrig s disease with no cure and whose cause is unknown.

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