Fun run in Idaho Falls Saturday morning raising funds for local 7-year-old with rare disorder
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7-year-old Owen Hansen of Idaho Falls was recently diagnosed with a rare neurodegenerative disorder | Courtesy Liza Leonard
The following is a news release from Ball Ventures.
IDAHO FALLS – The 2021 Hero Fun Run/Walk 5K and 10K in Idaho Falls on Saturday, May 22 will raise awareness for local hero Owen Hansen and the extremely rare condition with which he was recently diagnosed.
Owen is 7 years old. He loves Mario Kart, basketball and playing with his two sisters. Owen was recently diagnosed with the condition Ataxia-Telangiectasia or “A-T”. A-T is a rare genetic neurodegenerative disorder that attacks children, causing progressive loss of muscle control, cancer, and immune system problems. There are fewer than 500 current cases of A-T in the country.