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May 26, 2021 ACT for ALS Act endorsed by I AM ALS, ALS Association and Muscular Dystrophy Association WASHINGTON – On Tuesday, U.S. Senators Chris Coons (D-Del.), co-chair of the Senate ALS Caucus, and Lisa Murkowski (R-Alaska), along with U.S. Representatives Mike Quigley (D-Ill.) and Jeff Fortenberry (R-Neb.) reintroduced the bipartisan, bicameral  Accelerating Access to Critical Therapies for ALS Act (ACT for ALS). This legislation would create the infrastructure necessary to fund early access to promising investigational therapies for patients suffering from fast-progressing rare neurodegenerative and terminal diseases, like ALS. “Action to support patients with ALS and discover new therapies is incredibly urgent,” 

United statesCapitol hillDistrict of columbiaJeff fortenberryChris coonsLisa murkowskiPaul melmeyerMike quigleyCalaneet balasMuscular dystrophy associationUs senateRare neurodegenerative disease grant programCommerce committeeHouse energyMuscular dystrophyRepresentatives mike quigley