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[Rare Disease Day] Health advocacy groups press for government policy, say India s numbers unknown The 450 kinds of rare diseases recognised in India were identified because patients reported them. The government has not issued an official list of identified rare diseases. 0 claps Share on Only 450 of the 8,000 known rare diseases in the world are recognised in India, an anomaly that underscores a mounting health crisis in which many patients go without being diagnosed accurately or treated on time, say experts while stressing the urgent need for a comprehensive policy. Rare diseases, including genetic disorders such as Hunter syndrome, Gaucher disease and Fabry s disease, are expensive to treat, difficult to identify, and extract a huge toll, mostly on the young, the experts said ahead of Rare Disease Day on Sunday.

West bengalPrasanna shirolDipanjana dattaAshok guptaChandigarh post graduate institute of medical educationOrganisation of rare diseasesJaipur sawai man singh medical collegeInstitute of child healthNational policy for treatment of rare diseasesDelhi all india institute of medical sciencesRare disease dayRare diseasesChild healthAll india instituteMedical sciencesPost graduate institute