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As Rare Disease Day approaches on Sunday February 28, The Fingal Independent speaks to a Swords mum whose family suffered in silence from a genetic disorder until a Late Late Show episode prompted them to seek help. Dara Woods and other members of her family suffer from HHT (Hereditary Haemorrhagic Telangiectasia (also known as Osler-Weber-Rendu Syndrome.) Essentially a genetic disorder in which some blood vessels do not develop properly, HHT commonly affects the nose, lungs, GI tract, brain and liver and other organs. With symptoms ranging from mild to severe, left untreated or undiagnosed, HHT can be fatal. Dara speaks to The Fingal Independent about her family s long battle with HHT, and how it ultimately took 22-year-old son, Paul s life.

United statesFrance generalUniversity hospital in corkCork university hospitalSunday februaryFingal independentLate showHereditary haemorrhagic telangiectasiaOsler weber rendu syndromeUniversity hospitalஒன்றுபட்டது மாநிலங்களில்பிரான்ஸ் ஜநரல்பல்கலைக்கழகம் மருத்துவமனை இல் கார்க்கார்க் பல்கலைக்கழகம் மருத்துவமனைஞாயிற்றுக்கிழமை பிப்ரவரிவிரல் சுயாதீனமான