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New Multi-institutional Study Analyzes Tumor Tissue and Patient Data to Improve Care

Credit: NCI-CONNECT Staff Studying tumor tissue and clinical data across our national network of institutions will help researchers advance their knowledge of rare brain and spine tumors faster.   NCI-CONNECT is launching a study across its network of clinical collaborators to better understand rare brain and spine tumors. The study collects tumor tissue and comprehensive clinical data from deceased patients with rare brain and spine tumors and people that were pregnant at diagnosis or became pregnant after diagnosis of a primary brain tumor. “The data are out there waiting to be analyzed and understood. The more data we collect, the better we can design clinical trials and study therapeutic options that improve the outcomes of patients,” says Marta Penas-Prado, M.D., principal investigator of the study and an associate research physician in the Neuro-Oncology Branch, Center for Cancer Research, NCI, NIH.

What to Expect During and After Radiation Treatments

What to Expect During and After Radiation Treatments Nick and his wife, Nicole Credit: NCI-CONNECT Nick had four surgeries and multiple radiation treatments to treat his ependymoma tumors. He shares what to expect during and after radiation and how cancer changed his outlook on life. In 2004, when I was 12 years old, I had severe back pain and spasms. When I laid down at night, I experienced episodes where I couldn’t move for 10 to 15 minutes. Since my father was in the medical field, he knew something wasn’t normal. An MRI showed a 12-centimeter grade I myxopapillary ependymoma inside my spinal column in my lower lumbar. After emergency surgery, the doctors reported they removed all the tumor except for a couple of very microscopic spots.

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