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Jesse s Journey and Parent Project Muscular Dystrophy Award $172,000 (CAD) Clinical Fellowship in Duchenne Endocrinology and Bone Fragility

Jesse s Journey and Parent Project Muscular Dystrophy Award $172,000 (CAD) Clinical Fellowship in Duchenne Endocrinology and Bone Fragility
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Parent Project Muscular Dystrophy Announces Addition of Nemours Dr Mena Scavina to PPMD Staff as Certified Duchenne Care Center Program Advisor

Duchenne muscular dystrophy (Duchenne), today announced a grant to Nemours/Alfred I. duPont Hospital for Children in Wilmington, Delaware, allowing Dr. Mena Scavina, director of the hospital s muscle clinic, to spend dedicated time working as an advisor to the PPMD team. As part of this new role, Dr. Scavina will develop and optimize a variety of programs within PPMD s portfolio to advance clinical care to all people living with or affected by Duchenne. Nemours was named a Certified Duchenne Care Center (CDCC) by PPMD in August 2017, and is one of 28 certified centers throughout the United States. Through the certification program, PPMD established an ongoing and collaborative relationship with Dr. Scavina, the center s neuromuscular program director.

Sign up Now: The GOLO 5K Virtual Run/Walk Returns on ( NEWARK )

NEWARK, Del. (PRWEB) April 22, 2021 The COVID-19 pandemic continues to significantly impact nearly every aspect of our lives, including our daily workouts and fitness routines. With this in mind, GOLO, the pioneering wellness solutions company, is bringing back its popular GOLO 5K Virtual Run/Walk this spring. Scheduled for April 24, 2021, the GOLO 5K Virtual Run/Walk is free and open to the public. Best of all, participants can complete the virtual event at their own pace by either running, walking, or jogging. After completing the event, competitors can then submit their results, route, and pictures to enter a special drawing for GOLO prizes. Click here to learn more and to sign-up.

Parent Project Muscular Dystrophy Awards $31,500 Grant to Understand Immune Response to CRISPR/Cas-9 Gene Editing Strategies

Share this article Share this article HACKENSACK, N.J., April 8, 2021 /PRNewswire/ Parent Project Muscular Dystrophy (PPMD), a nonprofit organization leading the fight to end Duchenne muscular dystrophy (Duchenne), awarded the University of Missouri School of Medicine a bridge grant for $31,500 to continue evaluating CRISPR therapy in a pre-clinical model of Duchenne. The project is led by Dongsheng Duan, PhD, Margaret Proctor Mulligan Professor in Medical Research at the MU School of Medicine. Duchenne is the most common fatal genetic disorder diagnosed in childhood, affecting approximately one in 5,000 live male births. Duchenne is caused by a change in the DMD gene that codes for the dystrophin protein. Currently, a number of strategies are in development to explore the possibility of using gene editing to restore production of a functional dystrophin protein.

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