Lupus Foundation of America Unites Nationwide Lupus Community to Make an Impact for Lupus Awareness Month this May
Throughout May, the Foundation will lead the effort to raise lupus awareness and make lupus visible
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WASHINGTON, April 30, 2021 /PRNewswire/ This May for Lupus Awareness Month, the Lupus Foundation of America will continue its effort to
Make Lupus Visible, encouraging lupus warriors, family members and friends to raise awareness for the often invisible and devastating disease while also raising funds to support lupus research, education programs and support services.
Over half of Americans (63%) have never heard of or know little or nothing about lupus, underscoring the urgent need to raise awareness of the disease s brutal impact on every part of a person s life. Because many symptoms and effects of lupus are invisible, it can often leave those living with lupus feeling misunderstood and isolated.
124 Patient Groups Urge Biden Administration to Improve Prescription Drug Affordability
Advocates Call on HHS Secretary to Ensure Insurance Works for Patients
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HIV+Hepatitis Policy Institute (HIV+Hep) and
American Autoimmune Related Diseases Association (AARDA), in collaboration with 122 other patient and provider organizations, delivered a sign-on letter to U.S. Department of Health and Human Services (HHS) Secretary Xavier Becerra that urges HHS and the Biden administration to enact policies and protections that improve prescription drug affordability for the American people. The letter details how recent trends in the healthcare system, including high deductible plans and high cost-sharing, have threatened treatment affordability for patients, which negatively impacts adherence and worsens health outcomes. The patient advocates encourage Secretary Becerra and the Biden administration to:
124 Patient Groups Urge Biden Administration to Improve Prescription Drug Affordability prnewswire.com - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from prnewswire.com Daily Mail and Mail on Sunday newspapers.
Najha Marshall smiles for a photo after her graduation ceremony in December 2020. Photo courtesy of Najha Marshall
Najha Marshall knew early on her passions for social justice and science would have a strong influence on her life. After a lupus diagnosis at the age of 7 and growing up in the grips of a flawed health care system, deciding what she wanted to write her honors thesis about was not a difficult decision.
Recounting her own struggles with lupus treatment, Marshall, who graduated from Texas State in December 2020 with a Bachelor of Science in microbiology, approaches the issue of health inequalities through a social justice lens. Her Honors College thesis, âHow Lupus Crossed the Color Line: Chronic Illness and the Reproduction of Racism in Health Care,â addresses the treatment and diagnostic disparities faced by women of color with lupus.
World Lupus Federation Global Survey of People with Lupus Finds Half of Respondents Experienced a Decrease in Access to Healthcare During COVID-19 Pandemic
earlier than the general population
WASHINGTON, April 21, 2021 /PRNewswire/ In a new global survey, more than 6,100 people with lupus from over 85 countries shared their recent experiences of the COVID-19 pandemic and their views of the COVID-19 vaccines. Half (50%) of the survey participants reported decreased access to at least one aspect of lupus healthcare during the last three months, including decreased access to their lupus doctor/rheumatologist (36%), medical tests (29%), infusions for lupus treatment (24%) and lupus medications (17%).
The international survey conducted by the World Lupus Federation further outlines how those living with lupus have been uniquely impacted during the COVID-19 pandemic. The survey also found that 10% of those surveyed have been infected with COVID-19, well above the global average of co