Mattawan girl leading way with treatment after being first diagnosis for rare genetic disorder
A West Michigan girl is the first to ever be diagnosed with Bachmann-Bupp syndrome, a rare genetic mutation.
and last updated 2021-07-16 22:43:45-04
MATTAWAN, Mich. â Six-year-old Marley Berthoud is on the move.
âItâs just been this continuum of advancements,â said Kelly Berthoud, Marleyâs mom. âWeâre seeing a lot of progression with her movements.â
Marleyâs ability to scoot through her Mattawan home and her head full of hair are just some of the changes sheâs recently experienced.
âItâs awesome to watch that sheâs progressing so rapidly,â said Kelly. âFor so long, the first four years of her life, she was very basic function.â
See The Best Children s Hospitals In MI In New U S News List patch.com - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from patch.com Daily Mail and Mail on Sunday newspapers.
It s a project that was started a few years ago. Due to COVID-19, the event had to go virtual for the last year. Now you can help out in person once again. You can help lift the spirits of the kids at DeVos Children s Hospital by participating in Project Night Lights .
It doesn t take much to participate. Just bring a flashlight and join other community members and law enforcement outside DeVos Children s Hospital on the second Wednesday of every month at 8:30 pm.
The kids who are inside DeVos Children s Hospital will flash their flashlights out the window and then people gathered outside respond by flashing their lights.
A recommendation to make Pfizer’s COVID-19 vaccine available to children as young as 12 slated to go before a federal vaccine advisory committee on Wednesday.
West Michigan Docs: Kids Should Get Vaccine
Shortly after it was announced that children aged 12-15 would be eligible for the two dose Pfizer vaccine, West Michigan parents began considering whether or not their eligible kids should get the vaccine, and the short answer from West Michigan doctors is, yes.
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In a media call this morning, Dr. Rosemary Olivero, Pediatric Infectious Disease Physician at Helen DeVos Children’s Hospital and Dr. Liam Sullivan, Infectious Disease Physician at Spectrum Health both agreed that getting your child vaccinated was the best step to protect your kids and slow down the virus. Especially as worrying variants increase across the globe.