Where does your passion stem from? Is it a personal connection? I currently know two people suffering with ALS. One, recently diagnosed, and the other, Mayuri Saxena, was told she had 1-5 years left at the age of 32. She is in her 4th year of battling this disease and is now 100 percent paralyzed, on a ventilator, using a feeding tube, only able to move her eyes, with her brilliant mind completely intact. My passion and urgency of action stems from wanting to keep her alive. Seeing what she has been through, I do not want that fate for anyone else, ever. Mayuri has been an incredible self-advocate, even wrote a book about her experience called