Park Rapids, Minn., family has one hope for baby with rare disorder: 'For him to be happy' Danielle and Derek Kraus of Park Rapids, Minn., had no idea their son Henry would be diagnosed with neonatal Marfan syndrome, a rare and serious condition. Written By: Robin Huebner | × Eight-month-old Henry Kraus is shown in this photo with his mother, Danielle; his father, Derek; and his five-year-old sister, Evie, at their home in Park Rapids, Minn. Henry has a rare, life-threatening genetic disorder known as Marfan syndrome. Special to The Forum PARK RAPIDS, Minn. — In many ways, Henry Kraus is a typical baby. He has his first few teeth coming in, likes to look at books and is thoroughly entertained by the antics of his older sister.