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Leduc family hoping for gene therapy treatment


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When Alex Johnston and Ryan Fengstad heard the government of Alberta would be funding the gene therapy drug Zolgensma, they felt a weight lift off their shoulders.
“We’ve gotten a lot of tough news and this past year, with Zolgensma specifically, it just felt like there have been a lot of closed doors in our faces, and it really felt like Reign was getting left behind. With this new announcement we were so excited, we were overjoyed, we were crying watching the announcement with [Alberta Health Minister] Tyler Shandro,” Johnston said.
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Access Program In Alberta , Access Program , Managed Access , Special Access Program , Managed Access Program , நுழைவு ப்ரோக்ர்யாம் இல் ஆல்பர்ட்டா , நுழைவு ப்ரோக்ர்யாம் , நிர்வகிக்கப்பட்டது நுழைவு , சிறப்பு நுழைவு ப்ரோக்ர்யாம் , நிர்வகிக்கப்பட்டது நுழைவு ப்ரோக்ர்யாம் ,