The Chinese dad making medicine to treat his dying son
Menkes Syndrome is more prevalent in boys than girls, and it is estimated one in 100,000 babies are born with the disease globally according to organisation Rare Diseases.
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Menkes Syndrome is more prevalent in boys than girls, and it is estimated one in 100,000 babies are born with the disease globally according to organisation Rare Diseases.
Two-year-old Haoyang has likely just months to live -- but the only medicine that can help his rare genetic condition is not found anywhere in China and closed borders due to the Covid-19 pandemic mean he cannot travel for treatment
This father created a home laboratory to make life-saving medicine for his son
KUNMING: Two-year-old Haoyang has likely just months to live -- but the only medicine that can help his rare genetic condition is not found anywhere in China and closed borders due to the Covid-19 pandemic mean he cannot travel for treatment.
KUNMING, China -- Two-year-old Haoyang has likely just months to live -- but the only medicine that can help his rare genetic condition is not found anywhere in China and closed borders due to the Covid-19 pandemic mean he cannot travel for treatment. AFP/ MANILA BULLETIN Instead, his desperate