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Rare diseases can mean a lonely station with little contact with other sufferers and very little helpful information.

Clare Changemakers Shine Light on Their Experiences of Living with Rare Disease Through a New Rare Disease Awareness Campaign, ‘I Am Number 17’. The campaign features 17 ‘Changemakers’ – individuals from all over Ireland living with a rare disease – who are sharing their stories to promote better understanding and awareness of rare diseases in […]

Two Clare women are participating in a new national campaign that will aim to spread awareness of rare diseases. 22 Year-Old Ennis resident Ciara Micks was diagnosed with Ehlers Danlos Syndrome in 2015. The genetic condition which affects connective tissues supporting the skin, bones, blood vessels, and can lead to chronic fatigue, insomnia, seizures and […]

On Wednesday’s Morning Focus, Alan was joined by Ciara Micks who is the daughter of Anne Micks, winner of the 2022 Clare Family Carer of the Year Award. Ciara discussed her battle with Ehlers Donlos Syndrome and the impact that it has had on her life. She spoke about the challenges she faces on a […]