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Looking through a new lens: insights into patient participation in rare disease research

Published: February 21, 2022

Orphanet Journal of Rare Diseases is proud to present this blog article by Meagan Collins, a runner-up entry in beacon for rare diseases and Medics4RareDiseases' "Student Voice" contest.

Source: biomedcentral.com

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David FajgenbaumCollaborative NetworkParticipant PanelCuregrin FoundationInternational Rare Diseases Research ConsortiumGlobal Alliance For GenomicsDigital Research Advisory GroupNational Health ServiceGenomics EnglandResearch AdvisoryDrug Administration ApprovedN Methyld AspartateCollaborative Network ApproachGlobal Alliance