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BBCNEWS BBC News at One June 1, 2021 12:05:00 - Vimarsana News

BBCNEWS BBC News at One June 1, 2021 12:05:00

Their condition notjust stabilise but improve. arthur's parents say they know it's not a cure, and they're simply delighted that he's been treated. fergus walsh, bbc news. and fergus is here with me now. it's extraordinary treatment and extraordinarily expensive as well but what are the implications of this medicine? it’s but what are the implications of this medicine?— but what are the implications of this medicine? �*, . ., ., ., ., this medicine? it's a real honour to meet author— this medicine? it's a real honour to meet author and _ this medicine? it's a real honour to meet author...

BBCNEWS BBC News June 1, 2021 13:04:00 - Vimarsana News

BBCNEWS BBC News June 1, 2021 13:04:00

His parents hope he will be eligible for zolgensma, but they know the longer the treatment is delayed, the less effective it is. for his quality of life and how long his life could be, zolgensma isjust a game changer. and we're just kind of patiently waiting, we've been waiting since last november for zolgensma. some other infants treated with zolgensma have seen their condition notjust stabilise but improve. arthur's parents say they know it's not a cure, and they're simply delighted that he's been treated. fergus walsh, bbc news. joining us now is professor tom gillingwater, who is professor...

BBCNEWS BBC News June 1, 2021 14:20:00 - Vimarsana News

BBCNEWS BBC News June 1, 2021 14:20:00

Of centres in the uk which will offer this groundbreaking gene therapy. 20 years ago, a baby born with a severe form of sma would have a very shortened life expectancy. we can now offer treatment that can really alter the outlook for these children. edward is eight months old. his parents hope he will be eligible for zolgensma, but they know the longer the treatment is delayed, the less effective it is. for his quality of life and how long his life could be, zolgensma isjust a game changer. and we're just kind of patiently waiting, we've been waiting since last november, for zolgensma. some ot...