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'Timing is key': Parents call for inclusion of rare genetic disease in newborn heel prick test - Vimarsana News

'Timing is key': Parents call for inclusion of rare genetic disease in newborn heel prick test

SMA is a degenerative disease that causes damage to nerves that develop muscle function and allow children to eat, move and breathe.

Parents call for babies to be tested for rare muscle condition - Vimarsana News

Parents call for babies to be tested for rare muscle condition

The parents of two children born with Spinal Muscular Atrophy (SMA) are calling for babies to be tested for the rare condition in the heel prick test.

Source: her.ie
One of my sons got early treatment for a devastating condition, the other didn't - the difference is black and white - Vimarsana News

One of my sons got early treatment for a devastating condition, the other didn't - the difference is black and white

THE PARENTS of two boys with a rare genetic condition are calling for the country’s newborn screening service to be expanded - after seeing one of t

Source: thesun.ie
The Taoiseach is officiating at the National Famine Commemoration in Strokestown today - Vimarsana News

The Taoiseach is officiating at the National Famine Commemoration in Strokestown today

Taoiseach Micheál Martin is officiating at the National Famine Commemoration in Strokestown in County Roscommon today.He will be accompanied by Minister of Stat...

Ireland's National Famine Commemoration 2022 - Vimarsana News

Ireland's National Famine Commemoration 2022

Ireland's National Famine Commemoration 2022 will take place at National Famine Museum in Co Roscommon and will include performances by musician Declan O'Rourke.