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Newborn babies to be tested for Spinal Muscular Atrophy from next year

The heel prick test currently involves testing newborns for nine rare but serious conditions. ....

Stephen Donnelly , Jonathan Ogrady , Michelle Hennessy , Health Service Executive , Quality Authority , National Screening Advisory Committee , National Newborn Bloodspot Screening Programme , Health Information , Spinal Muscular Atrophy , Minister Stephen Donnelly , National Screening Advisory , Jonathano Grady , Heel Prick Test , Spinal Muscular Atrophy , Stephen Donnelly ,

Spinal muscular atrophy: Baby heel prick test 'could be life-changing'

An Irish mother wants babies tested at birth so those with a rare condition are treated quickly. ....

United Kingdom , County Meath , Republic Of Ireland , David Ryan , Liz Mcmahon , Nuala Mccann , Jonathan Ogrady , Luke Liz Mcmahon , Oxford University , Jonathano Grady ,

Parents call for babies to be tested for rare muscle condition

The parents of two children born with Spinal Muscular Atrophy (SMA) are calling for babies to be tested for the rare condition in the heel prick test. ....

Declan Orourke , David Ryan , Liz Mcmahon , Jonathan Ogrady , Children Health Ireland , Spinal Muscular Atrophy , Health Ireland , Jonathano Grady , Spinal Muscular Atrophy ,

Killorglin father says approved drug will change his baby son's life

A Killorglin father says the HSE’s decision to approve reimbursement for a gene therapy drug will change his son’s life.Five-month-old Theo Whelan has been diag. ....

Theo Whelan , Michael Healy Rae , Norma Foley , Deputy Healy Rae , Brendan Griffin , Jonathan Ogrady , Health Stephen Donnelly , Fine Gael , Spinal Muscular Atrophy , Jonathano Grady ,

'Life-changing' - Price of drug for Irish babies with rare disease to be reimbursed

The price of a life-changing drug for Irish babies with a rare progressive disease has been agreed. The HSE will now reimburse single-dose Zolgensma gene . ....

United States , Jonathan Ogrady , Spinal Muscular Atrophy , Jonathano Grady ,