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Newborn babies to be tested for Spinal Muscular Atrophy from next year

The heel prick test currently involves testing newborns for nine rare but serious conditions.

Stephen donnellyJonathan ogradyMichelle hennessyHealth service executiveQuality authorityNational screening advisory committeeNational newborn bloodspot screening programmeHealth informationSpinal muscular atrophyMinister stephen donnellyNational screening advisoryJonathano gradyHeel prick testSpinal muscular atrophyStephen donnelly

Spinal muscular atrophy: Baby heel prick test could be life-changing

An Irish mother wants babies tested at birth so those with a rare condition are treated quickly.

United kingdomCounty meathRepublic of irelandDavid ryanLiz mcmahonNuala mccannJonathan ogradyLuke liz mcmahonOxford universityJonathano grady

Parents call for babies to be tested for rare muscle condition

The parents of two children born with Spinal Muscular Atrophy (SMA) are calling for babies to be tested for the rare condition in the heel prick test.

Declan orourkeDavid ryanLiz mcmahonJonathan ogradyChildren health irelandSpinal muscular atrophyHealth irelandJonathano gradySpinal muscular atrophy

Killorglin father says approved drug will change his baby son s life

A Killorglin father says the HSE’s decision to approve reimbursement for a gene therapy drug will change his son’s life.Five-month-old Theo Whelan has been diag.

Theo whelanMichael healy raeNorma foleyDeputy healy raeBrendan griffinJonathan ogradyHealth stephen donnellyFine gaelSpinal muscular atrophyJonathano grady

Life-changing - Price of drug for Irish babies with rare disease to be reimbursed

The price of a life-changing drug for Irish babies with a rare progressive disease has been agreed. The HSE will now reimburse single-dose Zolgensma gene .

United statesJonathan ogradySpinal muscular atrophyJonathano grady

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