Newborn babies to be tested for Spinal Muscular Atrophy from next year
The heel prick test currently involves testing newborns for nine rare but serious conditions.
Source: thejournal.ie
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Spinal muscular atrophy: Baby heel prick test 'could be life-changing'
An Irish mother wants babies tested at birth so those with a rare condition are treated quickly.
Source: bbc.co.uk
Parents call for babies to be tested for rare muscle condition
The parents of two children born with Spinal Muscular Atrophy (SMA) are calling for babies to be tested for the rare condition in the heel prick test.
Source: her.ie
Killorglin father says approved drug will change his baby son's life
A Killorglin father says the HSE’s decision to approve reimbursement for a gene therapy drug will change his son’s life.Five-month-old Theo Whelan has been diag...
Source: radiokerry.ie
'Life-changing' - Price of drug for Irish babies with rare disease to be reimbursed
The price of a life-changing drug for Irish babies with a rare progressive disease has been agreed. The HSE will now reimburse single-dose Zolgensma gene ...
Source: longfordleader.ie