Detailed text transcripts for TV channel - DW - 20190506:09:23:00
. hardly anyone knows this better than the people at the alliance of chronic rare diseases we're meeting christina moaned loss. whether voice of those affected by red diseases. that affect some four million people in germany alone but few of them suffer from the same rare disease. doesn't run in american terms it's normally a few thousand people but it can also be only a handful of patients worldwide get. patients like yourself initial it's who's ten years old today she was born with swellings had a heart defect. her parents went from doctor to doctor but no one could give them an answer it to...