Ethan Didnt Ask News Today : Breaking News, Live Updates & Top Stories | Vimarsana

I know that ethan's heart is now formed from this syndrome. what else has happened to his body? help usnd the health challenges he face now. >> the syndrome he has remembers different arrangements. any of the internal organs can be malformed, missing, multiplied, or misplaced. ethan was born with nine heart defects, nine congenital heart defects and he has two with left lungs. five or so spleens of dubious function and his liver and his gallbladder are down the middle of his body along with his heart and then his stomach is on the ride instead of the left side. >> seeing the pictures on the ri...

Have our baby and go right back to the ship. once he was 8 weeks old. instead, we are facing this incredibly uncertain future for our kid. we had been volunteering for nearly six years, so we didn't have a huge bank account left to draw from for his costs. and the travel insurance that we carried while we were on the ship maxed out before we even had ethan completely diagnosed. in utero. so we were able, through the medicaid expansion we were able to turn to medicaid and medicaid covered the rest of my pregnancy care, it covered his birth at the children's hospital of philadelphia. it covered ...

During the clinton administration they worked essentially during the entire administration. health care is a very, very tough thing to get, but i think we are going to get it. we don't have too much of a choice because the alternative is the dead carcass of obamacare. >> lawmakers push to get a health care bill through the senate a mom is speaking out about it. her son ethan was born with a serious jeanetgenetic defect wh organs form on the wrong side of the ball and results in heart defect as well. she tweeted her son's hospital bill and it went viral. both allison and ethan who is now nearly...

That legislators want him to die and don't think he is worth it, or do you they are just disconnected from the work they are doing and the people it affects? >> i don't think that -- i honestly -- this is why i post our story and why i share our story. i don't think anyone can look a 2-year-old child in the face and say, i think you're not worth it. but what they are doing with these bills, what they are doing with a lifetime cap is saying you have used up enough resources. i'm sorry you were born sick and sorry your mother chose life for you and you were born sick but now that life is not wor...

What you're dealing with here. he has had four open chest surgeries in his short three years. eight e.r. visits. regularly sees a pediatrician, immunologist and electric cardiologist for the pacemaker he has and five prescription meds five times a day. i know you contend the new health care act would change all of this. help usnd how the health care act, obamacare has helped you thus far. >> yeah. so when ethan was first diagnosed with hetero taxi i was 24 weeks pregnant. we were on maternity leave from hoopt ship where my husband and i worked in south africa receiving health medically care fo...