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The family of a 30-year-old man in Thunder Bay, Ont., who's fighting a rare form of cancer is waging a battle of their own: Trying to get funding for his treatments, which cost $9,000 each.
Kelly Marchand of London, Ont., is thankful her seven-year-old daughter Charlotte, who has cystic fibrosis, is finally taking a prescription medication that some doctors describe as life changing.
Sara Aldrich's application for provincial coverage for Trikafta, which lessens CF's severity and slows its progression, was just approved.
Article content The family of a Pikwàkanagàn boy with a rare disease has learned that the cost of groundbreaking gene replacement therapy will be covered by Jordan’s Principle, a legal requirement that gives Indigenous children access to health and education supports. “We were crying, we were so happy,” said Dana Verch, the mother of 14-month-old Kevin, who was diagnosed with spinal muscular atrophy, on Dec. 26. We apologize, but this video has failed to load. Try refreshing your browser, or 'A big weight off our shoulders': Boy with rare disease covered for groundbreaking therapy Ba...
Article content Less than five days after an Eganville-area family launched a GoFundMe page to raise $2.8 million to pay for cutting-edge gene replacement therapy for their baby, the province has announced that it will pay for the drug on a case-by-case basis. “It feels really great. It gives us hope that the government realizes how important this is,” said Dana Pearce, the mother of 14-month-old Kevin Verch. We apologize, but this video has failed to load. Try refreshing your browser, or Ontario to cover cost of drug for rare neuromuscular disease on a 'case-by-case basis' Back to video...