CNN CNN Newsroom December 2, 2013 15:25:00
Doctors said he was an undesirable candidate for a transplant because it would limit his survive after he got the heart. >> but you did your own research? >> yes. >> and what did you find? >> that that is not true. >> reporter: she asked some of the world's top experts about her son's disorder and they said it would not limit his chances of survival with the new heart. that's what they told us too. dr. coffin, he's the coffin in the coffin syndrome, he told us it's wrong to deny someone a transplant because of the syndrome. so what do they think was the real reason? they think it's because of ...