Rare disease hero: Indian dad whose daughter suffers from Pompe has done wonders for similar kids across the country
Rare disease hero: Indian dad whose daughter suffers from Pompe has done wonders for similar kids across the country Prasanna Shirol used his experience accompanying his daughter for lengthy medical treatments to help establish rare disease centres in hospitals across India Like many rare disease advocates, he wants a national policy for rare diseases to fund genetic counselling for high-risk parents, treatment and supportive care