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Fda. and when the government shuts down and there s less obviously resources and staffing, some of those steps along the way begin to get pushed back, not to mention funding not only for san felipo syndrome but also many other rare diseases that children with these terminal conditions are kind of waiting on for expedited approval. so until the government reopens, precisely what does that mean for you guys? so they re interacting with the fda and all the preclinical steps that have to happen to get things set up for this trial, whether there are meetings and data that has to go back and forth. and all of that process will be stalled while the government is shutdown. and the syndrome is go ahead. no, go ahead, glenn, i m sorry. yeah. the syndrome is such where usually by age 6 eliza will be 4 in november, usually by age 6 ....
And every time she has those behavioral changes, we re thinking in our minds is this it, is this the beginning of the decline? because that is a big question in everyone s mind in this community is, you know, when do they reach their peak? and every child is different. so to have that weigh on your mind all the time is really concerning. and to hear about the parents experiences that have walked before us when they say i ve had to see my child so frustrated when they began to lose speech, when they can no longer run and play with their siblings. it s just, it s hard to go there in my mind for eliza and i hope we never have to. cara and glenn o neil, our thoughts and prayers with you. good luck to you. keep us posted, okay? thank you so much for this opportunity to share the story. thank you. thank you. and we will be right back. when we made our commitment to the gulf, bp had two big goals: ....