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There is no cure yet. i think the human knee-jerk reaction is to look away, because it s really hard to see, and it s real suffering, but the more i see, the more i see the families and how hard they fight, the more i realize, you know, we can t look away. we have to look. we have to see. reporter: black is the ambassador for the foundation. hi efforts help fund research. he says it all comes back to family and the music. i m a songwriter, do i a do a lot of self-examination, soul-searching, so i ve always felt inclined to do what i can. as i fight for my own successes, i feel like part of the battle has to be for those things i can help along the way. ....
Impact on a mysterious disease that has hit home. country singer clint black is known for his signature cowboy hat and his classic sound. but beyond the music, black is supporting the fight against a disease called rhett syndrome. my niece courtney, my brother kevin s daughter, was afflicted with this and lost her battle with it at age 16. rhett syndrome almost always affects girls. it s usually diagnosed by 18 months. children can t communicate and require constant care. there is no cure yet. i think the human knee jerk reaction is to look away because it s really hard to see. and it s real suffering. but the more i see, the more i see the families and how hard they fight, the more i realize we can t look away. we have to look. we have to see. black is the ambassador for ....