What is Sanfilippo Syndrome? Michigan family shares their journey
Commerce Twp. parents share their journey of one twin diagnosed with a rare disease called Sanfilippo Syndrome
Source: fox17online.com
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What is Sanfilippo Syndrome? Local family shares their journey
Commerce Twp. parents share their journey of one twin diagnosed with a rare disease called Sanfilippo Syndrome
Source: wxyz.com
Parents' persistence leads to discovery of son's rare neurodegenerative genetic disorder
When a Commerce Township couple noticed that one of their sons was advancing more than his twin brother, it led them down a rabbit hole of Googling. While doctors initially thought he couldn't have a rare disorder, they finally discovered that one of the boys has a neurodegenerative genetic disorder with a short lifespan.
Source: fox2detroit.com