Jake Collier S News Today : Breaking News, Live Updates & Top Stories | Vimarsana

Some time now and joins us excu exclusively tonight. thank you so much for joining us tonight. how is jake? >> jake is doing okay. he's struggling with pneumonia from flu he caught and was admitted on sunday but he seems to be progressing in the right direction. >> all right. let's talk about him. jake is 3 years old and suffers from spinal muscular atrophy. tell us about his struggle with the disease and his prognosis. >> sure. he was diagnosed when he was roughly 6 months old. he's got type 2 which is he's able to sit but not stand or walk. he's, you know, he's a wonderful boy and his progno...

Try not to get too in the weeds here. just to answer my question, you don't think that he should have that option until it's that late in the game when it comes to -- >> no, i believe that he should have the option, but we already have a system for that. the fda has a compassionate use -- >> we don't. >> go ahead, lucy. >> we don't have a system at all in place. the reason the goldwater institute designed the right to try initiative is that we have a million americans dying of terminal illness every year and the vast majority of them are locked out of accessing these drugs. am i saying there i...

...then fuel up with double points or double miles on your next getaway. make every stay more rewarding and feel the hamptonality welcome back, everyone. the vigt right to try signed into law in colorado. sparked a heated debate. joining me is lucy caldwell, communications director at the caldwell institute and dr. andrew von eschenbaugh and cnn's david crowell, and cnn's very own elizabeth cohen, author of "the empowered patient." good evening to all of you. david kroll, start you first. when we hear cases like jake