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CNN CNN Newsroom June 28, 2013 19:17:00

We had made sarah s battle very public, but we were completely emotionally unprepared for what was to come. that evening, as we waited for sarah to be transitioned back to her room, an emergency code blue was announced, and sarah s vital signs had begun to fail. this was an incredibly difficult time for the family, as you can imagine. three days later, doctors were telling the family that sarah was unlikely to survive for more than a week. again, this is what doctors were telling her. saying that her lung allocation score, this is the score that they give patients in terms of how serious they are, was an 87, zero to 100, she was at an 87. sarah needed to get another transplant. they were able to give her a second transplant. the family keeping this to themselves, keeping it out of public eye because they saw what happened after the first time, they wanted to make sure that sarah was in the clear and once again, you see the new picture that s up right now. ....

Sarah Murnaghan , Vital Signs , Emergency Code Blue , Battle Very Public , Lung Allocation Score , Public Eye ,

CNN CNN Newsroom June 15, 2013 17:41:00

Transplants across the board, about 50% of these patients survive only five years, so this is a tough operation and a tough recovery as well. sarah of course has the concern of these being adult lungs, specifically lobes of adult lungs that have been transplanted and also that she still has cystic fibrosis. this can infect the lungs and increase one s chance of infection. she also is going to need to take these medications to reduce her chance of rejection of her lungs. these drugs which can put her at risk for infection. those are some of the biggest concerns going forward. when you think about lung transplants overall, there s something known as a lung allocation score. basically, what you re trying to find is the person in greatest need of the transplant, but also most likely to benefit from the ....

Adult Lungs , Cystic Fibrosis , Lung Transplants , Lung Allocation Score ,

Detailed text transcripts for TV channel - FOXNEWS - 20130610:23:23:00

Her mother says she thought her daughter might die at one point over the weekend. a health scare on saturday forced doctors in philly to sedate the 10-year-old and insert a breathing tube. she is in the end stages they tell us of cystic fibrosis. genetic disorder that causes lung infections. latest ordeal left her feeling terrified and overwhelmed. a judge ordered last week that she and an 11-year-old boy with the same disease should both go on the adult waiting list for organ transplant. the rules normally keep anybody under 12 off that list. trace gallagher with more. trace, some tense moments from the family that s already endured so much. and because she is on a breathing tube, shep, her lung allocation score which is what they use to gauge how sick she is has skyrocketed. a week ago it was 66. friday 78. now it s up to 91. it just cannot get any worse. now, she is at the top of the transplant list but three factors play into when she actually gets donor lungs. ....

Breathing Tube , Health Scare , The End , Cystic Fibrosis , Adult Waiting List , Genetic Disorder , Organ Transplant , Lung Infections , Trace Gallagher , Lung Allocation Score , Donor Lungs , Transplant List ,

Detailed text transcripts for TV channel - FOXNEWS - 20130610:23:24:00

One is geography. the donor lungs can only be a few hours away or they simply will not last. two, size, adult lungs can be modified to fit sarah but they cannot be too big or they won t work and finally, blood type. it has to match. so the body will not reject it the bottom line here, shep, is the family needs the stars to align and they need them to align very quickly, shep? shepard: today, health experts held a big meeting on organ transplant rules for kids, trace. it led to it a big change, shep. you had lawyers arguing that the rule under 12 should be changed. you had a transplant patient saying that the real key is to get more donors involved, people to sign up. most of the doctors said the rules should not be changed because inherently it was not unfair. up about but then you had the chairman of the organ transplant who said kids under 12 should be taken case by case. listen to him. standard to allow centers to request a lung ....

Donor Lungs , Blood Type , Little Star Shepard , Bottom Line , Organ Transplant Rules , Health Experts , Transplant Patient , It Led , Lung Allocation Score , Organ Transplant ,

Detailed text transcripts for TV channel - FOXNEWS - 20130608:22:37:00

Philadelphia ruling in philadelphia, it will be based on her lung allocation score. she has one of the highest, if not the highest in the state of pennsylvania. so based on that score, she should be getting it as soon as possible. she s at the top of the list. she was at the bottom of the list because she wasn t treated as an adult. rick: one other point that this once again highlights the need for people to register as organ donors. if we had people actually go and register as donors, the deficit of available donor organs would make such great point. many states you can do it on your license. other states it s more complicated. you get a couple witnesses. easy to do. rick: you could do it on facebook. i m going to be doing it myself. julie: go to donatelife.net back slash register now. our prayers are with this family. they are. rick: you can catch the interview with the family on ....

Lung Allocation Score , State Of Pennsylvania , Including Rick , Organ Donors , Donor Organs , Back Slash , Julie Go To Donatelife Net ,