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>> yeah. yeah. >> reporter: why the deep intake of breath? >> cause that's a big scary thing. that's a big scary thing. >> reporter: with lenore working only part time, the family relies on her husband mike's income. so they decide to take a scouting trip to florida to find out if nick can get the same kind of support there. >> we went to medicaid. we went to providers down there and asked the questions. >> reporter: dateline is with lenore on her visit to florida agencies where employees are incredibly candid about how little they have to offer. they allow their conversations with lenore to b...

Federal law says they must have something called a "transition plan" created by their school district. it's supposed to be a set of measurable goals designed to prepare young people for adult life. but nick's mom lenore hasn't received anything. so she and her husband mike call the school superintendent to complain. >> i have no transition plan. and the clock is ticking. which is why i said to you, i'm fearful that we're just delaying and delaying here and nickolas's needs are not being met. dateline found nick's case is not unique. according to our analysis of the most recent u.s. department ...

Something called a "transition plan" created by their school district. it's supposed to be a set of measurable goals designed to prepare young people for adult life. but nick's mom lenore hasn't received anything. so she and her husband mike call the school superintendent to complain. >> i have no transition plan. and the clock is ticking. which is why i said to you, i'm fearful that we're just delaying and delaying here and nickolas's needs are not being met. dateline found nick's case is not unique. >> reporter: lenore begins making frantic calls herself trying to get nick hooked up with an ...

Your husband's job is shifting to florida. >> yeah. yeah. >> reporter: why the deep intake of breath? >> cause that's a big scary thing. that's a big scary thing. >> reporter: with lenore working only part time, the family relies on her husband mike's income. so they decide to take a scouting trip to florida to find out if nick can get the same kind of support there. >> we went to medicaid. we went to providers down there and asked the questions. >> reporter: dateline is with lenore on her visit to florida agencies where employees are incredibly candid about how little they have to offer. they...

>> at this point under the law, no. >> reporter: what's more, lewis says states split their medicaid dollars between the poor and people with disabilities. she says it all adds up to a system that can't take that much weight. back in new york, he is better off staying put, so they are breaking up the family. mike will move to florida for his job alone. >> what does it mean to the family? >> it will be long distance and it leaves nick and my daughter and i here to try to figure out how we're going to be three quarters of a family. and keep dad connected. >> reporter: eric's family is also settl...