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Twins in and out of hospital since birth speak about living with cystic fibrosis


But along with looking the same, the 15-year-olds have another major thing in common - both have the lung-damaging condition cystic fibrosis.
Sometimes it can feel like a brick crushing you, or just like someone really heavy sitting on your back, says Lili. 
The twins have been in and out of hospital since they were born. The genetic disorder rules their lives and it comes with a life expectancy of just the mid-thirties. 
They take piles of medication, use nebulisers every day to release the mucus in their lungs and feeding tubes at night to keep their weight up.
Yet Manaia and Lili don t tell anyone they have cystic fibrosis.  ....

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