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The Northern Ireland Rare Disease Partnership celebrate ten years of hard work and look to the next ten years
"The Rare Disease Partnership has undoubtedly been a critical support network for so many when they felt they had nowhere else to turn"
Markh durkan
Hypermobile ehlers danlos
Stephanie duguez
Profit company
Rare disease all party group
Northern ireland rare disease partnership
Ni registered charity
Party group
Ulster university
Rare disease partnership
Rare disease
Hypermobile ehlers danlos syndrome
Fibrodysplasia ossificans progressiva syndrome
Northern ireland
Rare disease action plan
All party group
Rare doesn t mean rare, this affects thousands of people
The Northern Ireland Rare Disease Partnership celebrate ten years of hard work and look to the next ten years
Northern ireland
United kingdom
Republic of ireland
Edel rogan
Hypermobile ehlers danlos
Stephanie duguez
Sandra campbell
Rhoda walker
Patrick toland
Profit company
Northern ireland rare disease partnership
Ulster university
Northern ireland department of health
Community activator
Public health agency
Ni registered charity
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