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Transcripts for CNN Weekend Early Start 20130608 10:45:00

What should happen now is clear. the system needs to be changed and fair for everybody, for adults and children. i don t want sarah in front of anybody who is sicker. it should be the sickest person first. javier s family knows the pain of waiting all too well. in 2009, his brother who also had cystic fibrosis died whale waiting for a transplant. they initiated the lawsuit against hhs and secretary sebelius urging her to change the under 12 rule. she was questioned about it during a hearing. the worst of all worlds in my mind is to have some individual pick who chooses and who dies. you want to process where it s guided by medical science and experts. dhhs has declined to comment on the on going legal matter, and on monday the organization ....

Person First , Cystic Fibrosis , Whale Waiting , Secretary Sebelius , Department Of Health And Human Services ,

Transcripts for CNN CNN Saturday Morning 20130608 12:24:00

Prevented all children under the age of 12 from receiving priority in the adult pool of patients waiting for transplants. lung donations from children are rare, but children can use a nodified lung from an adult and since there are more lung donations from adults, the murnaghans say what should happen now is clear. the system needs to be changed. it needs to be fair for everyone, for adults and for children. i don t want sarah in front of anyone who is sicker. this should be the sickest person first. reporter: javier s family knows the pain of waiting all too well. in 2009 his brother, who also had cystic fibrosis, died while waiting for a transplant. the murnaghans initiated the lawsuit against hhs and secretary kathleen sebelius urging her to change the so-called under 12 rule. sebelius was questioned about it during a budget hearing. the worst of all worlds in my mind is to have some individual pick and choose who lives and who dies. i think you want a process where ....

Lung Donations , Adult Pool , Sarah Murnaghan , Person First , Javier Acosta , Kathleen Sebelius , Department Of Health And Human Services , Cystic Fibrosis , Budget Hearing ,

Transcripts for CNN CNN Newsroom 20130608 15:51:00

Of health and human services to temporarily suspend policy in sara and javier s case which prevented all children under the age of 12 to receive priority in the adult pool of patients waiting for transplants. lung donation from children are rare, but children can use a modified lung from an adult and since there are more lung donations from adults, they say what should happen now is clear. the system needs to be changed. it needs to be fair for everyone, for adults and for children. i don t want sara in front of anyone who s sicker. this should be the sickest person first. reporter: javier s family knows the pain of waiting all too well. in 2009, his brother who also had cystic fibrosis, died while waiting for a transplant. the mernahan s initiated the lawsuit against hhs and secretary kathleen sebelius urging her to change the so-called under-12 rule. sebelius was questioned about it ....

Lung Donation , Adult Pool , Department Of Health And Human Services , Javier Acosta , Lung Donations , Cystic Fibrosis , Person First , Kathleen Sebelius ,

Transcripts for CNN CNN Newsroom 20130608 19:40:00

Could you understand and she felt a lot of hope when i explained it to her. earlier this week the judge ordered the department of health and human services to temporarily suspend policy in sara and javier s case which had prevented all children under the age of 12 from receiving priority in the adult pool of patients waiting for transplants. lung donation from children are rare. children can use a modified lung from an adult, and since there are more lung donations from adults, they say what should happen now is clear. the system needs to be changed. it needs to be fair for everyone, for adults and for children. i don t want sara in front of anyone who is sicker. this should be the sickest person first. javier s family knows the pain of waiting all too well. in 2009 his brother who also that cystic fibrosis died while waiting for a transplant. the muchlt urnaghans initiated ....

Department Of Health And Human Services , Lung Donation , Lung Donations , Adult Pool , Person First , Muchlt Urnaghans , Cystic Fibrosis ,