The Myrovlytis Trust Leverages Pulse Infoframe's Platform to Study Birt-Hogg-Dubé Syndrome
Only 600 families known to carry the gene mutation, prompting global patient registry to learn more
Source: prunderground.com
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The Myrovlytis Trust Leverages Pulse Infoframe's Platform to Study Birt-Hogg-Dubé Syndrome
/PRNewswire/ -- The Myrovlytis Trust is creating a patient registry for Birt-Hogg-Dubé Syndrome (BHD) to better understand the epidemiology of the disease, its...
Source: prnewswire.com
Cytel and Pulse Infoframe deploy real-world data solutions
Cytel and Pulse Infoframe have collaborated to create a solution that marks a new direction in drug development
Source: selectscience.net
Ensuring No Duplicates: Implementing Pulse Infoframe's GUID Model to Transfer and Link Patient Data from Study to Registry for Rare Disease
/PRNewswire/ -- Pulse Infoframe and the Loulou Foundation have announced a collaboration to leverage Pulse Infoframe's novel globally unique identifier (GUID)...
Source: prnewswire.com
Ensuring No Duplicates: Implementing Pulse Infoframe's GUID Model to Transfer and Link Patient Data from Study to Registry for Rare Disease
/PRNewswire/ -- Pulse Infoframe and the Loulou Foundation have announced a collaboration to leverage Pulse Infoframe's novel globally unique identifier (GUID)...
Source: prnewswire.com