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People with rare diseases are falling through the cracks , says North Wales MS

People with rare diseases are falling through the cracks , says North Wales MS
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United kingdomRare autoimmune rheumatic disease allianceNorth walesPlaid cymruWelsh government

Concern over those with rare autoimmune rheumatic diseases

PEOPLE who have rare diseases are "falling through the cracks" in the health system, according to a North Wales MS.

United kingdomRare autoimmune rheumatic disease allianceWelsh government

Study Finds Clinicians Rank Patient Views as Least Important in Diagnosis

Experts today call for more value to be given to patients’ ‘lived experiences’ as a study of over 1,000 patients and clinicians found multiple examples of patient reports being under-valued. It’s incredibly important that we listen to and value

United kingdomCity ofTom pollakMelanie sloanKing college londonInstitute of psychiatryDepartment of public healthUniversity of cambridgeRare autoimmune rheumatic disease alliancePublic healthPrimary careCollege londonLupus trust

Most Clinicians Fail To Consider Their Patients Self-Assessments

Less than 4% of clinicians consider a patient’s self-assessments as one of the top three types of evidence in diagnoses, according to a study of 400 clinicians and 676.

United kingdomCity ofTom pollakMelanie sloanDepartment of public healthRare autoimmune rheumatic disease allianceUniversity of cambridgeKing college londonPublic healthPrimary careCollege londonSue farringtonMedical gaslightingAutoimmune condition

Study reveals clinicians rank patient views as least important in diagnosis

Experts are calling for a shift away from the traditional notion of doctor knows best.

City ofUnited kingdomTom pollakMelanie sloanKing college londonUniversity of cambridgeRare autoimmune rheumatic disease allianceCollege londonIagnostic decisionsNeuropsychiatric symptoms

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