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"What does a "good life" mean for people living with dementia? A protoc" by Irina Kinchin, Iracema Leroi et al.

Introduction: Economic evaluation currently focuses almost exclusively on the maximization of health, using the Quality-Adjusted Life-Year (QALY) framework with instruments such as the EQ-5D, with a limited number of health-focused dimensions providing the assessment of health benefit. This evaluative framework is likely to be insufficient for setting priorities in dementia care because of its exclusive concern with health. Data are also often collected from the perspective of a proxy, limiting the voice of those living with dementia in decision-making. This protocol describes a research project that aims to gather the perspectives of people living with dementia, their insights, and preferences for assessing their quality of life to inform economic evaluation outcome measurement and design with a goal of creating a more robust evidence base for the value of healthcare services. Specifically, this study will elucidate what a “good life” means to people living with dementia and how w ....

County South Dublin , Tallaght University Hospital Joint Research Ethics Committee , Tallaght University Hospitals , Quality Adjusted Life Year , Approval Date , Capability Approach , Economic Evaluation , Outcome Measurement , Reference Based Health Related Quality Of Life ,