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BBCNEWS The Travel Show January 7, 2022 11:48:00 - Vimarsana News

BBCNEWS The Travel Show January 7, 2022 11:48:00

Muscle weakness. as a baby, edward became floppy, he couldn't move his legs. doctors feared that one day he might lose the ability to breathe. and then along came the most expensive drug in the world — zolgensma. it costs £1.8 million, although the nhs got a discount and approved it for use last may. this is edward being given zolgensma via a drip last august. the one—off treatment lasted an hour. in that time, his life was transformed. his muscle tone is a lot stronger. he's almost feeling like a child that doesn't have sma. he can roll, he can hold his head. i mean, honestly, it's endle...

BBCNEWS BBC News at One January 7, 2022 13:18:00 - Vimarsana News

BBCNEWS BBC News at One January 7, 2022 13:18:00

Edward has been transformed. zoe conway has been to meet him and his mum, megan. he's just my little boy, just completely in awe of him, he's like the strongest little baby i know. i'm just so proud of him. he's just doing so well. edward was born with the genetic condition spinal muscular atrophy. it causes progressive muscle weakness. as a baby, edward became floppy, he couldn't move his legs. doctors feared that one day he might lose the ability to breathe. and then along came the most expensive drug in the world — zolgensma. it costs £1.8 million, although the nhs got a discount and app...

BBCNEWS BBC News January 7, 2022 10:43:00 - Vimarsana News

BBCNEWS BBC News January 7, 2022 10:43:00

But it rings hollow in a country that disagrees on how to define an attack that almost broke its democracy. nomia iqbal, bbc news, washington. last year the world's most expensive drug was approved for use in the uk for the treatment of the rare genetic disorder, spinal muscular atrophy. one—year—old edward was given zolgensma in august, and it's changed his life. zoe conway reports. he's just my little boy, just completely in awe of him, he's like the strongest little baby i know. i'm just so proud of him. he's just doing so well. edward was born with the genetic condition spinal muscular...

BBCNEWS Desmond Tutu Remembered January 7, 2022 14:49:00 - Vimarsana News

BBCNEWS Desmond Tutu Remembered January 7, 2022 14:49:00

Atmosphere. kids are pleased to be here. it is going to be a tough time. ,., ., .~' here. it is going to be a tough time. a ., here. it is going to be a tough time. ., i. here. it is going to be a tough time. ., ., time. good luck to you for the term ahead. time. good luck to you for the term ahead- head _ time. good luck to you for the term ahead. head teacher— time. good luck to you for the term ahead. head teacher of _ time. good luck to you for the term ahead. head teacher of high - time. good luck to you for the term | ahead. head teacher of high tunstall in hartlepool. one in 10,000 ba...

MSNBC Dateline January 16, 2022 09:57:00 - Vimarsana News

MSNBC Dateline January 16, 2022 09:57:00

Defendant guilty of the crime of murder, a felony. >> guilty as charged. lisa's family couldn't hold back the tears. , we. >> we were just weeping of relief. >> scott hung his head when the verdict was read. remaining silent, stone faced as he was escorted back to jail. >> scott you have anything to say? >> jurors said, the foremost factor that bridge the divide was an experiment that they conducted in the courtroom. they asked the judge if they could re-examine the weight bench. one of the female jurors agreed to play, they wanted to know how easy it would be for her to wriggle out from benea...