CNN Weekend Early Start June 9, 2013 10:23:00
Jovan died while waiting for a lung on the children's transplant list. he was the same age javier is now and also suffered from cystic fibrosis. >> it's hard for me to tell my son, you know, you have to have faith and be hopeful, and this is going to happen for you, and inside knowing the chances are slim. it really hurts. it's my only child now. and knowing the facts. >> reporter: and turning 12 is significant in these cases because that's how old you have to be to get on a priority list for adult lungs. juvenile lungs are much harder to find. if the current transplant rules do not change, ch...