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CNN Newsroom-20130726-17:46:00

stronger is the ability to see uncle nap love. >> it's a privilege to walk with somebody along a path that's hard. >> reporter: it's a path that so many families are forced to take. >> augie says he's one of the lucky ones. he has extraordinary resources to have 24 hour care. he's experimented with various drug trails and is determined to fight this disease. with the tap of a toe or a blink of an eye those with als are redining what it means to be alive. these are the faces of als. my mother myrna and augie say it's the emotional connection they have with those they love that keep them alive. they also say this disease has taught them what unconditional love looks like. thank you for the amazing response we have gotten and i want to share a couple of your tweets. this one, thank you for sharing

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