Ukrainian family in battle to raise $2.3 million to save their son | KyivPost
on social media The son of Vitaliy Svichynskyi and Maria Svichynska was nearly two months old when he suddenly started to lose the ability to move. The family soon learned their baby boy Dmytro was born with Spinal Muscular Atrophy (SMA) Type 1, the most severe type of the rare genetic disorder found in one of 10,000 babies born worldwide. The disorder only gets worse over time without treatment, causing muscle weakness and affecting a child’s movement and breathing abilities, often leading to death. The only medicine that can change that is Zolgensma, the world’s most expensi...
Source: kyivpost.com