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$3.3 million to support Australians living with rare disease

The Hon Greg Hunt MP
Minister for Health and Aged Care
The Morrison Government is providing $3.3 million to support the approximate two million Australians living with a rare disease, providing them with support, raise awareness and create new educational programs.
The new funding will drive the development and delivery of awareness and education resources, and care and support services, for people living with a rare disease, their families and carers, health professionals and the wider population.
Minister for Health and Aged Care, Greg Hunt, said the funding would help to provide new supports to those living with rare diseases.
“Rare diseases are defined as those that affect fewer than 5 in 10,000 people. It’s estimated there are more than 7,000 rare diseases affecting about 8% of the Australian population. Most have genetic origins and many have no known cure,” Minister Hunt said. ....

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Rare Disease Day 2021: Raising awareness of childhood dementia

Rare Disease Day 2021: Raising awareness of childhood dementia
Feb 25 2021
In the lead-up to Rare Diseases Day – on Sunday February 28 - Associate Professor Kim Hemsley’s studies into childhood dementia are helping to unlock answers that can assist treatment of these largely unheralded conditions.
Image Credit: Flinders University
Associate Professor Hemsley leads the Childhood Dementia Research Group, within the Flinders Health and Medical Research Institute (FHMRI) at Flinders University, which is a team of medical researchers whose goal is to identify and test treatments for childhood-onset dementia.
Around the world, 700,000 children and young people are living with childhood dementia.
People are surprised and very saddened when I tell them that unfortunately yes, children get dementia too. It s typically something associated with aging,” ....

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