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'He's just a baby': Saskatoon family shows support for one-year-old in hospital with rare brain disease


 
SASKATOON
A Saskatoon family has not left the bedside of Oakley Fidler, a one-year-old diagnosed with a rare brain disease.
On Feb. 12, Oakley collapsed at home according to his grandmother Lana Fidler, who spoke to CTV News in the hospital parking lot of the Jim Pattison Children’s Hospital on Sunday.
“He’s such a good kid, he’s just a baby, he’s just walking around and starting to talk and he loves ‘Baby Shark,’” Lana Filder said. “He’s just a lovable little kid.”
According to the boy’s father Preston Fidler, doctors diagnosed Oakley with acute leukoencephalopathy, a rare condition where the white matter of the brain is infected. On Facebook Preston said doctors don’t see this condition in Canada often, and that this disease is found more often in foreign countries, Preston wrote. ....

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Family of Saskatoon boy with rare condition hold parking lot parade


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People have been showing up for Oakley Fidler. As the one-year-old remains in hospital with an extremely rare brain condition, his family has received a steady stream of online support.
That became tangible on Sunday as a small group congregated outside of Royal University Hospital.
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Family of Saskatoon boy with extremely rare brain condition hold parade outside hospital Back to video
Holding signs reading “We love you Oakley” and “You got this” decorated with stickers depicting his favourite animal, sharks, a group of Oakley’s loved ones held a makeshift parade. The group met near the cancer clinic Sunday and walked through the hospital’s parking lot. ....

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