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Community Hero: Grant Bonebrake champions those with rare diseases and wins national award


While growing up in La Jolla, Grant Bonebrake underwent a school-required hearing test in fifth grade in which students push a button when they hear a sound. He waited a second to hear the sound and push the button. Then a few seconds. Then a minute. Then a few minutes.
He waited there with the device in his hand but never heard the sound.
For the record:
12:33 PM, Dec. 21, 2020This article was updated to correct that the award was given by the EveryLife Foundation for Rare Diseases. It also was corrected to state that Grant Bonebrake grew up in La Jolla and now lives in Pacific Beach. ....

Lisa Bonebrake , National Kidney Foundation , Alport Syndrome Foundation , Grant Bonebrake , Alport Syndrome , Rare Disease Legislative Advocate Rarevoice , State Advocacy , Capitol Hill , National Kidney , Living Donor Protection Act , Young Adult Representatives , Rare Disease Legislation , லிசா எலும்பு முறிவு , தேசிய கிட்நீ அடித்தளம் , மானியம் எலும்பு முறிவு , கேபிடல் மலை , தேசிய கிட்நீ , வாழும் நன்கொடையாளர் ப்ரொடெக்ஶந் நாடகம் , ரேர் நோய் சட்டம் ,