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Ghana Lights Up Kwame Nkrumah Museum To Mark 2021 Global Rare Disease Day

Ghana Lights Up Kwame Nkrumah Museum To Mark 2021 Global Rare Disease Day
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Samuel Agyei , Kwame Nkrumah , Samuel Agyei Wiafe , Governmental Organisation , Ghana Ministry Of Health , Health Through Equity , Rare Disease Ghana Initiative , Rare Disease Community , Rare Disease Day , Kwame Nkrumah Mausoleum , Universal Health Through Equity , Executive Director , Non Governmental Organisation , Clinical Psychologist , Disease Ghana , Nkrumah Mausoleum , Rare Diseases , Rare Disease , அரசு ஆர்கநைஸேஶந் , கானா அமைச்சகம் ஆஃப் ஆரோக்கியம் , ஆரோக்கியம் மூலம் பங்கு , ரேர் நோய் கானா முயற்சி , ரேர் நோய் சமூக , ரேர் நோய் நாள் , உலகளாவிய ஆரோக்கியம் மூலம் பங்கு , நிர்வாகி இயக்குனர் ,

Ghana Lights Up Kwame Nkrumah Museum to mark 2021 Global Rare Disease Day

Ghana Lights Up Kwame Nkrumah Museum to mark 2021 Global Rare Disease Day
LISTEN
MAR 1, 2021
Ghana has joined the world to mark this year s 2021 Global Rare Disease Day which falls on the 28th of February every year.
On Sunday 28th February 2021, a symbolic observation of the 2021 edition of the Rare Disease Day, saw the lighting up of the Kwame Nkrumah Mausoleum, a national monument performed by the Rare Disease Ghana Initiative team.
The Lighting Up displayed the colours of the Rare Disease Day campaign.
Globally, Rare Disease Day is held to raise awareness for rare diseases and improve access to treatment and medical representation for individuals with rare diseases and their families. ....

Samuel Agyei , Kwame Nkrumah , Samuel Agyei Wiafe , Governmental Organisation , Ghana Ministry Of Health , Health Through Equity , Rare Disease Ghana Initiative , Rare Disease Community , Rare Disease Day , Kwame Nkrumah Mausoleum , Universal Health Through Equity , Executive Director , Non Governmental Organisation , Clinical Psychologist , Disease Ghana , Nkrumah Mausoleum , Rare Diseases , Rare Disease , அரசு ஆர்கநைஸேஶந் , கானா அமைச்சகம் ஆஃப் ஆரோக்கியம் , ஆரோக்கியம் மூலம் பங்கு , ரேர் நோய் கானா முயற்சி , ரேர் நோய் சமூக , ரேர் நோய் நாள் , உலகளாவிய ஆரோக்கியம் மூலம் பங்கு , நிர்வாகி இயக்குனர் ,

Activities for 2021 Rare Disease Day go virtual in the wake of COVID

Activities for 2021 Rare Disease Day go virtual in the wake of COVID
LISTEN
FEB 18, 2021
As part of efforts to ensure strict adherence to COVID-19 protocols, activities lined up for this year s 2021 edition and commemoration of the World Rare Disease Day which falls on the 28th of February will be done online with a series of virtual engagements with some selected schools.
This was disclosed by the Executive Director of Rare Disease Ghana Initiative, a Non-Governmental Organisation, Mr. Samuel Agyei Wiafe a Clinical Psychologist during a media briefing in Accra.
He further indicated that this year s event will engage the Association International School and the Tema International School respectively as part of the School Activation event. ....

Greater Accra , Samuel Agyei Wiafe , Association International School , Rare Diseases Ghana Initiative , Governmental Organisation , School Walk , Rare Disease Ghana Initiative , Rare Disease Community , Tema International School , School Activation , World Rare Disease Day , Executive Director , Non Governmental Organisation , Clinical Psychologist , Rare Diseases , Rare Disease Day , Black Star Square , Birth Defects , World Birth Defects , Orphan Drug , Disease Ghana Initiative , Diseases Ghana Initiative , அதிகமானது அக்ரா , சங்கம் சர்வதேச பள்ளி , ரேர் நோய்கள் கானா முயற்சி , அரசு ஆர்கநைஸேஶந் ,

More support needed to help people living with Rare Diseases

More support needed to help people living with Rare Diseases
LISTEN
FEB 18, 2021
It has emerged that Ghana lacks a policy framework meant to deal with health matters in relation to 7,000 prevalent rare diseases, and also the right treatment and the needed support for victims who suffer such undiagnosed conditions of health.
A rare disease is any disease that affects a small percentage of the population. Most rare diseases are genetic and thus are present throughout the person s entire life, even if symptoms do not immediately appear.
Many rare diseases appear early in life, and it is always likely about 30% of children with rare diseases will die before reaching their fifth birthday. ....

Samuel Agyei Wiafe , Governmental Organisation , Rare Disease Ghana Initiative , Rare Diseases Ghana Initiative , Rare Disease Community , Rare Diseases , Non Governmental Organisation , Executive Director , Clinical Psychologist , Orphan Drug , Rare Disease Day , Disease Ghana Initiative , Diseases Ghana Initiative , Birth Defects , World Birth Defects , அரசு ஆர்கநைஸேஶந் , ரேர் நோய் கானா முயற்சி , ரேர் நோய்கள் கானா முயற்சி , ரேர் நோய் சமூக , ரேர் நோய்கள் , அல்லாத அரசு ஆர்கநைஸேஶந் , நிர்வாகி இயக்குனர் , மருத்துவ உளவியலாளர் , ஆர்ஃபந் மருந்து , ரேர் நோய் நாள் , நோய் கானா முயற்சி ,